Is Benlysta a good treatment for Lupus?

christalmariee

My rehumotologist has recomended this treatment for me. I know little about it and was hoping to get positive feedback. 

chippy920

I started Benysta during the worst flare I've ever had.  After the first few treatment I definitely felt a difference. I was getting the infusion version of the drug then. The 2 days after the infusion were ruff for me. Symptoms like swelling in joints,  I had to get infused on Friday's to recover over the weekend and aches would increase. After the 2 days I would feel better. I have now been on Benlysta for about 3 years. I am afraid to go off the medication. I currently take the self injection version once a week. With the weekly version I don't feel any increase in symptoms. The only problem now is trying to travel with the injections. Let me know if you want to know more. 😊

christalmariee

I started the Benlysta a month ago and so far so good. We’ll see how it goes.

lizapple

I am supposed to be starting Benlysta this month and the doctor says it’s sippos to help relieve my joint pain and inflammation. 

KellyJoTn

Everyone is different when it comes to medication and symptoms. I can’t and wouldn’t take a chemo base drug or steroids. Just do with what I have and can. 

lizapple

I started Benlysta in January and I read that it takes at least 28 days to start working. I feel the same to be honest because I’ve only had 3 doses. I inject weekly. I do know that you have to continue take your other lupus medication is order for it work. 

MCronan

I was on Benlysta for 7 years.  It seemed to help with joint pains and I did not have a kidney related flare since starting it.  But I did need to stop it when I developed an IgG deficency and now need to get monthly infusions to replace the IgG.

cyndyv

I love Benlysta. I was in the last phase on clinical trials when it was infusions. Have been using it ever since. At least 7 years. So happy when they went to self-injectables. It's  made a real difference for me. Of course not every med works the same for everyone.