Hair loss

Mildred1019Mildred1019 Member New Member
I was recently diagnosed with subacute cutaneous lupus effecting my hair follicles (without lesions or scaling).  The back of my head above my neck was completely bald and several bald patches throughout.  The back of my head is being treated with steroid injections which are working, and the spots with a steroid cream. I feel like my hair is getting thinner and new bald spots appear as soon as the others go away.  I was told by my doctors this would or could happen.  Has anyone else had this?  If so, how are you treating it?  I am on a gluten free vegan diet. 
Tagged:

Comments

  • mylady13mylady13 Member New Member
    So sorry. This is happening to me. I am sad but not giving it too much thought. Have you tried biotin?
  • Finn523Finn523 Member New Member
    As a woman, thinning hair has been on of the hardest things for me to come to terms with. My hair used to be so very thick. For the past three years it has been thinning and it’s very hard to style to try and look presentable. I get Rituxin infusions to control Pericarditis. I do think it has caused more thinning. My hair is curly underneath and straight on top. Most of my hair loss is on the top. It’s discouraging. I have a wig but would rather not wear it because it makes me feel unnatural. I take Biotin everyday. My hair is the same but my fingernails are hard as rocks! 😅
    Anyway, I’m always searching for solutions. 
  • Kking15Kking15 Member New Member
    I was recently diagnosed last month with SLE and noticed my hair was falling out and thinning on my edges also had some bald spots in the back of my head. My hair generally grows fast so nobody knew, but me now, my edges in front are almost gone idk what to do. I take biotin, and I know it takes time, but I just want my hair back to normal it’s depressing to me. How do you guys deal with the hair loss
  • soninsonin Member New Member
    What is biotin? Is useful for the hair loss? I am in the same situation...but with a strong treatment for lupus nefrite since last week. Some advice? 
  • mylady13mylady13 Member New Member
    @sonin biotin is a supplement for the hair nails and skin
  • santisanti Member New Member
    Kking15 said:
    I was recently diagnosed last month with SLE and noticed my hair was falling out and thinning on my edges also had some bald spots in the back of my head. My hair generally grows fast so nobody knew, but me now, my edges in front are almost gone idk what to do. I take biotin, and I know it takes time, but I just want my hair back to normal it’s depressing to me. How do you guys deal with the hair loss
    I was also diagnosed with SLE 2 years ago and my hair was thinning and falling out. most natural way is to use castor oil and egg yolk once a week. also I read coconut oil is also good but personally I have been using castor oil and it made a big difference.  
  • drodeogirldrodeogirl Member New Member
    Santi 
    How do you use the castor oil?  Leave it on for a certain amount of time?
  • karin0923karin0923 Member New Member
    I’ve been trying Castor oil and I think is helping ..!! I put it on my hair and wash it Two days after .. 
Sign In or Register to comment.