Blood work
in Support
Hi- so 5-6 years ago I had a positive ANA test and was told to see a rheumatologist. I was told nothing else so not knowing rheumatologists handle more than rheumatoid arthritis... I did not go. I have been sick for around 13 years now and no one has been able to figure out what it is. My new primary retested me for ANA and did a specific lupus antibody test. Surprisingly the ANA came back negative this time but the lupus antibody test was “indeterminate” at a level of 9, 10 being positive. She wants me to see a rheumatologist. I also have low vitamin D as always. I am scared of a lupus diagnosis. Has anyone had test results like this? Where I live I have to wait over a month to see a rheumatologist and I’d just like some insight.
Thanks!
Comments
Don't be afraid of a Lupus diagnosis, you can still live a fairly healthy, active life. It is a lifestyle change (adjustment), it will have ups and downs, good days and bad but there are worse things. Having an answer, for some people, can actually lower your stress and fear and help you have more control over your emotions. I am still looking for my answers and the not knowing SUCKS. Seeing normal results when you don't feel normal, seeing abnormal results and having your doctor say "eh, it's fine. Just exercise" when exercise causes joint pain, fatigue, low grade fevers later that day, you have shortness of breath and you feel like utter crap the whole next day does NOT seem to make any sense. My Aunt says to do what your body says as long as it's not an unhealthy thing. If you feel like you need to take it easy, then do it, if you feel like you could get some exercise then go for it, but don't push too hard. She recommended natural foods that have anti inflammatory properties in them, just always do your research. When you get a diagnosis you don't have to worry about all of the other things it could be. You'll know what it is, have the chance to come to terms with it, and can make a plan. "Be a Pineapple"!
Sabrina