Employment/Symptoms

ShalyH

What kind of jobs does everyone have. What I experienced, not sure if its its common in lupus. Two things. One, I get this white patch, like if I burned my tongue (comes for a while, goes away for like two days) and two, I've had to slow down my life and do things slower because if I overdue it, I become sensitively stressed.Two, with this whole COVID19, my employer whom knows I have lupus and have accommodated - basically told me to wear a mask and move me - so I told myself " really? wow (that's not enough) " so something in my gut said email my doctor to make sure. Sure enough, the second day, I get a call from my doctors office, asking to pick up a letter. The letter stated that my employer needed to accommodate (work remotely) or I am considered disabled. They were able to accommodate and only worked one day remotely until I felt overwhelmed, mentally drained and feeling naturally drained is something that I've already carried. I returned the equipment and my employer said we'll keep in touch. My job title basically entailed 3 tasks with intricate in each on top of required call list of 100 and I was always slow. It got to a point where I felt drained, having to think about the next steps overwhelmed me. Upon returning the equipment, my boss was understanding. She in fact, encouraged my well being and safety.

Anyone else feel mentally drained easily? I feel like its a trait, I naturally go off energies both people and situations. I consider myself an introvert and empath, im sure someone on here can relate? I have lupus nephritis, my inflammation is under control. I feel more easily fatigue but I push through. I definitely do things more slowly.  

Angelo

it I can definitely relate to your symptoms as well. I am a registered nurse that as been living with SLE for the past 15 years . I continue to work, however, after completing my 12 hours shift , I need 2 days or more to recover. Definitely fighting fatigue and insomnia sometimes ., I just stay in bed on my days off. This seems to help. 

CRosebud

Hi, I’m new to the board. I was diagnosed a year ago with Lupus SLE. I’m a correctional officer for 28 years now and was a defensive tactics trainer. I’m was physically fit and very much into any types of sports even in my late 40s. Sense being diagnosed, well forced to see a specialist about blood work that was done. That’s when I was diagnosed and more of the inflammation was more noticeable. I realized during an exercise training I was feeling to much pain in my joints and breathing was becoming extremely hard.... this practically stopped me in my tracks. I can no longer do what I use to do, depression, stress and now anger has overcome me. I don’t know what to do. I’m no longer a correctional officer but still work in law enforcement at a desk. I swell like a ballon and in constant pain. This isn’t the life I signed up for and sure isn’t the way I want to go out. I’m so overwhelmed now and don’t know what to do. I have memory issues that is getting worse makes me feel I have dementia. I don’t want to go through this alone anymore and I’m embarrassed to talk about. What’s next for me disability? I would love someone’s feedback 

sino711

I feel so mentally drained and stressed all the time. I was diagnosed in what I felt to be the prime of my young life, I can’t even do half of the things I used to do. The fatigue can be so overwhelming, it’s like a constant battle. The arthritis and joint pain is also frustrating. The mental battle is one of the hardest, it’s so easy to become depressed and anxious. You are not alone on how you feel, I understand.