Possible lupus? Waiting on diagnosis...

BatesyBatesy Member New Member

Hi all!

To start, both my mother and sister have lupus. For the last year, I've been feeling super run down and miserable. No energy, and tired all the time. It started with a lot of gastrointestinal pain and discomfort, which was then diagnosed as c-diff. (I had taken an antibiotic for dental issues). I took the meds and got that cleared up, except I was still having gastro issues months later. I was told that was post infection IBS, and they ruled out Crohn's and Colitis. But the worst was that I was just so tired all the time!

Then I found out my thyroid was off. I was diagnosed with hypothyroidism, and given levothyroxine to take daily. But even still.... I'm so tired! But with the levothyroxine, now my thyroid levels are normal.

Ok, so then I started getting bad wrist pain. Had an x-ray which came back normal, but the pain was super annoying. On top of that, a part of my big toe went numb. After a nerve conduction study, it was determined that I had a pinched nerve in my ankle. Weird! They put me on Prednisone, and although it didn't clear up the toe issue, my wrist felt 100 times better while I was on it. I'm off Prednisone again, and the pain is back and worse than ever.

Ok.... So my doctor ordered a lab called lupus anticoagulant, and low and behold, it came back positive. I don't think she ordered an ANA.

So they referred me to a rheumatologist, and now I wait. I'm impatient and nervous.... Do you guys have any ideas? Thank you in advance!

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