SteveHSteveH Member New Member
I'm starting to get painful tingling sensations in my hands and feet. My Dr says I need to expect this as normal for me; he says it's the disease attacking my neural tissue. I think he's full of it. Exercises seem to help; at least I can still manage to drive safely. The fact is that I can stop moving and just wait for death, or I can keep moving, no matter how painful and live. I choose the latter. This effing disease is not going to win.


  • Summer1Summer1 Member New Member
    I also have painful tingling in my hands and feet, I hate it. It’s a bit like super painful pins and needles, do yours also go numb? I am also losing my hair at a rapid rate too at the moment. 
  • LupusGirlLupusGirl Member New Member
    Yes, they become numb. I like heat so I'm able to use a heated blanket on my feet as a treatment for neuropathy. The heat from my feet and the heat from my blanket seem to cancel each other out so I can sleep. 
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