New diagnoses of lupus and I feel alone
Hi I’m ash
I was just diagnosed with lupus a few weeks ago after over a year of being tested for things I didn’t have. It’s really been a struggle and honestly I’m scared. I’m not really a forum person but my boyfriend encouraged me to join a group and reach out to not feel so alone. If anyone has any advice I would really appreciate it or just finding some people who understand what I’m going through. I’m here for everyone too.
Also I’m sorry my post is so scattered lol
I hope everyone who reads this is having a good day and feeling well ♥️

Also I’m sorry my post is so scattered lol
I hope everyone who reads this is having a good day and feeling well ♥️
Comments
Some advice I can suggest to you is to know your limits. Figure out how long you can go doing regular activities for example cleaning, or cooking before you start to feel tired. I find that knowing a general time frame can help plan your day out a bit better. Hopefully that makes sense and I'm sorry if it doesn't. 😅 Another piece of advice I can suggest is to listen to your body. Take breaks when you need to and don't push it beyond it's limits. If you're anything like me, I feel worse the next day if I push myself too hard the previous one.
I hope you are doing well! Know that you're trying your best and remember to take it one day at a time!
Good luck with your challenges ahead, stay positive as much as you can, there will be days your body won't let you, just keep fighting.
How are you doing now? I have been active & strong in my life, but had various fleeting/severe/strange health problems since I was younger. I still ski (just less hours, recovery takes longer), eat great food (watch for lower inflammatory foods), walk and bike daily (it helps so much to keep moving). Mornings are rarely "clear" for me, it's true - but have worked jobs starting at 9am. Doable, but not fun for Lupus peeps! Know you have to keep care and keep moving - and you'll be able to do that with proper eating and light exercise - and remember to always rest. Keeps the inflammation a bit at bay. If you can find a support group in person near you, that may help support you in our sometimes "invisible" disease.
And BTW, if I didn't keep moving, (after my morning wakeup! lol) I'd be done. FYI, I am 58 years old - tand we have two kids - beautiful, healthy, brain able, physically able, and doing well.
The fact that you have, or maybe later, will always have, a supportive partner means a lot to living with LUPUS. It is a hard condition when we live with someone (or have family) who is un-sympathetic or unable to digest what all this means to NECESSARY lifestyle changes. My heart goes out to those who don't have partner or family support.
Any improvements? Have you made changes to your sleep, food and exercise to help yourself? How are you doing? How are you feeling