New to here
I’m fairly new to lupus. I was diagnosed 2 years ago. I had a horrible rash on 2 of my fingers on my right hand and was experiencing joint swelling and stiffness in my hands. I have been seeing a rheumatologist, but don’t really feel like I am getting the attention that I need...? If that makes sense. I feel like they are going through the motions....regular blood tests, meds, checkups every 6 months. Maybe that is what is supposed to happen. I really don’t know. I have a general diagnosis of SLE, but is there more? Can they narrow it down better? A friend just sent me a link to an article about the relation between certain gut bacteria and lupus. I have gut issues. I emailed my specialist and my PCP, but no one has gotten back to me. I’m so frustrated. I know what I need to do. I need to press them and advocate for myself. I just wonder if it’s the norm to just get blood tests and go see them every 6 months? Are there other tests I should be asking for to try and narrow it down more? I just don’t know.