My antids dna is 66 recently from one month i m in a lot of pain it started with my knee pain Which get worsen with time now my left leg n thigh feels like it is stretched , heavier while sitting and walking my foot seems bit different to me i can’t decide actually what happens to them swollen or shrink foot veins become prominent while walking i have been taking 6 steriod, NSAIDS but nothing improved i m too much in distress and can’t decide actually what is the problem nor any doctor is telling me
Do I have seizures or something else related to Lupus?
I’m 20 and I was diagnosed almost a year ago with lupus, but I can’t figure out if these episodes I’ve been having are related to lupus.
For almost two years I’ve been having these episodes once or twice a month where my whole body stiffens especially my left side (I can’t squeeze my hands or move much), I’m extremely confused, I stare into space, I’m unable to understand other people like the words get confused in my head, my heart speeds up, my face twitches sometimes, I’m nauseous, I drool, and if I’m exerting even a moderate amount of energy I “collapse” or faint and I’m so exhausted I can’t move for an extended period of time but I’m awake like I can hear everything. Before these episodes I often have a headache in the back of my neck and head.
After these episodes I’m often nauseous and tingly on my left arm, hand, and back. Usually I can remember most parts of the episodes.
I have had a CT scan and MRI during one of my first episodes over a year ago and showed no signs of a stroke. I have been to the ER several times for them and they don’t seem to have a concrete reason. One suggestion was hemiplegic migraines but that didn’t seem like the full answer.
I was looking into seizures and that could seem to be an answer. I take 200 mg of hydroxychloroquine and 4 mg of prednisone and that doesn’t seem to affect these episodes at all.
Any answers are appreciated!
I've read excellent research saying olive leaf extract is very beneficial for lupus, and seen on several lupus-information websites that it should be avoided! My take on this is that OLE is immunomodulatory and that this is different from immune-enhancing (which might be a concern for lupus sufferers). Does anyone have any knowledge or experience re OLE supplements?