Best Of
Re: fasting, does it relieve your symptoms?
The task of fasting has been know to greatly help, because as Lupus is an inflammatory disease that can be aggravated and/or triggered (Flare) by outside factors, including the way our foods are processed, fasting eliminates some of those free-radicals and inflammatory elements. However, as many with Lupus tend to be deficient in some of the critical vitamins and minerals (ie Vitamin D, B, Calcium, etc) necessary to sustain optimal health, that are naturally provided in the foods we consume, sometimes simply altering your daily diet is more beneficial (ie consuming functional foods). You should proceed with cautious and if possible seek the advisement of a professional dietician or nutritionist.
Re: Fatigue with lupus
First I explained what lupus is, then I asked ask them if they've ever have the flu then I let them know that the fatigue and the pain that I have is as if I have the flu on and off.
JM
5 ·
Re: Weird hip pain?
You need to get an MRI I just found out I have avascular necrosis. I've had hip pain fie two years and I didn't complain more till just recently about the pain so my primary care put in for an MRI
sfields08
5 ·
Re: Hello I’m new here and trying to get some answers input
Have u done with anti ANA and DNA testing ?
Sidra
5 ·
Re: Waiting to see the rheumatologist and I'm terrified
Definitely list all of your symptoms before you go. That way you make sure you don't miss anything when you are there! Leaving one symptom out can make them assume it isn't lupus even if all of the others align. Lupus is super hard to diagnose so it helps to give them as much information as possible, even down to your sleeping habits. In my experience, from seeing them as early as three years old, I've learned that rheumatologists try to write off your symptoms a lot. Don't let them! Tell them how you feel, when you feel it and make it clear for them.
briannawelborn
5 ·
Young Adults Living With Lupus
Hi All - I've been living with Lupus since I was diagnosed at 18 years old. I am currently 25 and am fortunate enough to be living with mild symptoms over the years of a total lifestyle adjustment. Diet changes, sleep pattern changes, an overall more holistic approach to life. These changes alone have left me feeling isolated from my peers and the 20s community - adding on the pain and discomfort from the disease leaves me feeling like a total outcast.
I've been searching and hoping to find peers within my age group to befriend and talk to living with the same (or similar) disease. Major fatigue, hair loss, joint paint are an upside symptom to organ failure, but still incredibly limiting and difficult to communicate with my friends/peers. I'd love to talk to someone going through this similar journey. Any other young adults battling with Lupus out there?
Warm Regards,
Lauren
I've been searching and hoping to find peers within my age group to befriend and talk to living with the same (or similar) disease. Major fatigue, hair loss, joint paint are an upside symptom to organ failure, but still incredibly limiting and difficult to communicate with my friends/peers. I'd love to talk to someone going through this similar journey. Any other young adults battling with Lupus out there?
Warm Regards,
Lauren
lstallone92
7 ·
Re: I need to cover up - make up suggestions?
There is a concealer by IT Cosmetics called Bye Bye Undereye. It is great as an all over concealer with great coverage. It can even be used as your foundation. A little goes a long way because it is a thicker consistency, but it does the job. It was developed with plastic surgeons. I use it every day to cover hyperpigmentation and terrible acne that I suspect flares due to my lupus.
Kimberley105
5 ·
Holistic Remedies for Lupus
Hello!
I am always looking for holistic remedies to try to help with my symptoms from lupus.
My go-to remedies are Turmeric with black pepper, ginger root, D3 and B12 (pill form). I also try to stay away from dairy and eggs, because they have more pro-inflammatory markers than anti-inflammatory markers. I keep my protein levels high, since it is easier to lose protein with Lupus (usually with organic poultry, ONE gluten free bars, Quest low-carb protein chips, etc.). I also try to keep my carbohydrates close to a moderate level, and my fat intake as low as possible, which seems to help eliminate some of my symptoms.
What are some things that you all usually take or withstand from in order to lower your symptoms?
gracen93
8 ·
Aging with Lupus.
I have been "living with lupus" for over three decades and I am constantly struggling to deal with the symptoms of a patient aging with an autoimmune condition. Do you have any ideas or suggestions?
AG
5 ·
Re: Fatigue with lupus
No matter how hard you try to explain lupus fatigue to others that don't have the disease it's not an easy task. Even my ex-boyfriend who seemed to understand my fatigue now is wondering about why I'm better all of a sudden and not when I was with him. I myself don't know the answer. Lupus fatigue seems to be worse sometimes and not so other days. I sometimes have better days than others and I just can't do anything about how I feel. So the only thing I say is that I'm feeling tired because it's one of the symptoms of my disease.
Borealis
6 ·
