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Re: Does Plaquenil causes panic attacks?

I went through the same thing at the beginning but over time, the sleep schedule returned, and as for the high pulse, I went to a specialist for a treatment that restored my heart rate to normal.

CristinaElena

1 ·

Re: Does Plaquenil causes panic attacks?

I've been on Plaquenil for almost 20 years and don't recall ever having this problem. The plaquenil did greatly help with my symptoms though! I'm on 200mg twice a day.

masoos

2 ·

Not myself anymore: mentally challenged.

I was diagnosed in 2007 and I’m 25 now. Till this day I haven’t accepted that I have lupus. Over the years I have lost confidence and deal with social anxiety. I prefer my own company because I’m easily exhausted. I don’t have any ambition and motivation to achieve anything. If I can stay home and not work I would choose that lifestyle any-day. I know deep down I love company and want to achieve big things but I struggle to interact and feel comfortable around people. I get days where I’m extremely fatigued, exhausted on random days where I literally struggle to get out of bed. Also I’m very forgetful. when I’m going through this, my closest don’t seem to understand me as a person and it’s stresses me out.

Surely lupus doesn’t just physically affect you but it comes with some mental health challenges? This should be further researched and also taken seriously during check up.
Can anyone relate?

soulbeauty_25

5 ·

Re: Young Adults Living With Lupus

Hello All! I am 25 years old and I was diagnosed with lupus on May 26, 2016. I was always sick as a child and my first symptoms at age 11 were chronic rashes all over my entire body. It felt like something was biting me, skin felt like it was on fire, and it would last for months. I was also always sensitive to the sun and always tired. These rashes would come and go and I would just go to the ER and get steroid shots to get relief because nothing helped. Finally at age 21 I went to see an allergist/immunologist to see if these rashes were caused by allergies. Results came back and he said I had a positive ANA and it was 1:640 and that I should see a rheumatologist. It took forever to get in to the specialty clinic, and then finally two years later the rheumatologist said "I'm sorry, you have lupus and you have to live a boring life." I still struggle on some days with the diagnosis and I cry about it. People assume I am ok, like friends, family, coworkers. But I don't feel good 70% of the time! Joint pain, fatigue, rashes, headaches, brain fog, and digestive issues are better than having major organ involvement, but it isn't easy. Do you ever get over it and just accept it? I get really sad about it some days. On the bright side, I live a fun life and have a good support system! I love going to music festivals and travelling. Lupus has slowed me down, but it hasn't stopped me!

yaya2311

5 ·

What I've found that works best for Lupus (Must Read)

About to change your life for whoever reads this & I live with Lupus as well. Got no help from any of the Drs or specialists. No matter what your gonna have some good an bad days but you'll be able to go thru life almost normal doing this. Now you'll never have the strength an endurance that you once had when fully healthy ever again bc Lupus just breaks the body down too much but this will keep you from feeling really sick tho. Give this 2 to 4 weeks an you'll start to see a major difference in your life. Autoimmune diseases come from too much inflammation in the body an it also cz a lot of other serious medical problems as well. 🌽 is 33% more contaminated than any other crop due to being modified in a lab an the pesticides we put on them, also have done tests an it's the only food so far that cz severe inflammation in every race. Stop eating anything with 🌽 ( high fructose syrup, syrup, starch, & etc) in it. Eat blueberries a few times a week along with cinnamon bc these take inflammation out better than anything. Eat natural fruits, veggies, seafood, chicken (grilled or baked) & limit other meats. In the mornings drink warm water with apple cider Vinegar, lemon an Manuka Honey to build a healthy digestive system, building the body back up starts here! Oils: olive & avocado mainly, limit coconut, light sesame, & flax/grape seed. Flours: Amaranth, quinoa, chickpea, rice, oat, & limit coconut. Nuts: need to eat daily except limit peanuts. Milks: Almond, limit coconut, & limit soy for males. Spices: ALL! Eat daily & extremely good for you. Teas: green, lavender an limeflower, ginger, turmeric & drink daily. Limit your caffeine intake so if you drink coffee then don't drink a green that day instead opt for a different one. Also if you need to take an over the counter then take ibuprofen bc it takes inflammation out as well

No artificial anything, 🌽, butter, bad oils, & wheat/soy due to being modified in a lab as well. 🌽 is in everything nowadays so always check the ingredients list. Enjoy! Saved my life! 😊 Pray you all find tranquility

Healthy_Life_Choices

6 ·

Re: How many years can we live with lupus?

I was diagnosed when I was 8 years old. That was 43 years ago. I have raised three children who are ages 23-28. Rest assured that living a long, active life with SLE is probable.

Be well.

kkaes

3 ·

Re: How many years can we live with lupus?

Please try meditation and relaxation. It will help you with the anxiety. Think positive thoughts.

Angelo

1 ·

Re: Welcome to the Lupus Research Alliance community!

I have had Lupus since 2005. I started taking the drug Protonix for reflux in 4/2005. I have been taking the drug Protonix continuously since 2005. Just last, 5/01/2018 I was on the Protonix website looking at the side effects associated with the drug because I have been suffering from nausea since the end of last year. Well, what I found was not only that it can cause nausea but that it can also cause certain types of LUPUS ERYTHEMATOSUS. I had never heard this before. My doctor has agreed to get me off this drug. It requires a stepped down process to get off it. I should be off it by 6/19/18. But This drug might be what what originally caused my LUPUS. First if you have Lupus and are taking Protonix or Nexium, both are Proton Pump Inhibitors contact your doctors and talk tothem about the effect the drug may have on your Lupus. If your have had a bad experience with taking Protonix or Nexium and your Lupus please contact me. Clem Clarke [email protected] Thank you.